Case studies

Stress levels were still high, and financially we were struggling

In June of 2010, our five-year old son Jacob was diagnosed with Coats’ Disease. Because of this condition we have had to travel 250 miles to London and back, every 3 to 4 months, so that Jacob can have check-ups and further treatment as required at Moorfields Eye Hospital.

Coats disease is a very rare condition where there is abnormal development in the blood vessels behind the retina. The blood rich retinal capillaries break open, and that causes the retina to swell, and can cause partial or complete blindness. Unfortunately, Jacob will not regain full vision in his right eye although he has had dramatic improvements thanks to the treatment he has received. 
Before our first trip to London, we had never visited the capital. We didn’t know what to expect and were anxious about going into a completely different environment, as we live in the countryside near Plymouth. We were worried about traffic, crowds and finding accommodation.

At first, we stayed at hotels and tried not to focus so much on the treatment as a reason why we were travelling, so that we didn’t put any more pressure on our children. So instead, we took it as an opportunity to explore London and visit local attractions.

However, stress levels were still high, and financially we were struggling, especially with a new baby and still being on maternity leave.

But one day we were referred to the Ronald McDonald House Moorfields, which was situated right inside the Moorfields Eye Hospital. Before the referral, we never knew the House existed.

When we met David, the House Manager, we were amazed about the amount of care and attention we received. Not to mention the standard of the facilities and the welcoming atmosphere that immediately put us at ease. We were offered a room in the 10 bedroom House and from then on, it felt like home.

The House had a kitchen, a play room and dining area and there were other families staying who were going through similar experiences. Specialist equipment for the blind and partially sighted was also in place.

‘For us, the most important thing was for the children to feel safe and the House provided just that – a safe haven.  Our daughter, Lerryn, was only a baby and a cot was installed in our room, so we all stayed together as a family.’

During one of our visits, a Polish family was also staying at the House. Although we didn’t speak each other’s language, we would always smile when we met and our children used to play together. That really goes to show how the House not only brings one family together, but all the families that stay there.

It is now January 2012 and we are getting ready for another visit. Jacob is nearly 7 and he is doing great in school and his social activities, and is now part way through his third year at school. We are so proud of what and who he has become and we know that Ronald McDonald House Moorfields has been, and will continue to be, a big part of his life and our hearts.  We cannot even begin to thank you enough for the weight you have lifted off our shoulders.