"We didn’t know where we were going to stay"

Sally and her partner Aydn stayed at our Manchester House for two months in 2016 between May and July when their twin daughters Hazel and Lily were sent to St Mary’s Neonatal Unit. It was discovered that both twins had TOF (Trachea-Oesophageal Fistula), a condition very rarely found in both twins, as well as VACTERL association. Hazel and Lily needed extensive treatment at a specialist hospital, over 100 miles away from the family’s home.

While the twins were being treated in Manchester, it was decided that Lily would need open heart surgery and needed to be transferred to the Alder Hey Children’s Hospital in Liverpool. Luckily Ronald McDonald House Alder Hey were able to accommodate the family so Sally and Aydn were able to stay close to their beautiful baby daughters in both cities.

Nearly a year on, Hazel and Lily had their baptism, and as a way of saying thank you the family asked their friends and family to make donations to the Manchester House in lieu of gifts.

Sally, Aydn, Hazel and Lily came to visit the team at the Manchester House before a recent check-up, and Sally kindly shared what the House meant to them:

“We live over 100 miles away from Manchester, so when our twins were born and both needed major surgery we didn’t know where we were going to stay. The nurses at NICU (neonatal intensive care unit) sent a referral to Ronald McDonald House and we were amazed by the rooms and the facilities.

We stayed at the Manchester House for two months, and can honestly say it was the thing that made our experience as pleasant as possible, given the circumstances. We could not find a fault.

Thanks so much to all the staff, volunteers and people who have donated to such a worthy charity.”

The family raised an amazing £810 at the twin’s baptism, which will help to provide 32 nights of free ‘home away from home’ accommodation to other families, just like theirs. We were delighted to hear that their recent MRI scan resulted in good news, showing that neither Hazel nor Lily has Hydrocephalus. The family are going from strength to strength and are delighted to be back home as a family.

 

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